Six weeks ago we were in the hospital. When we were admitted his platelets were at 1. Upon discharge they were at 22. Two days later, they were at 241.
And then began the descent; 91, 61, and 21.
The hematologist felt like we should treat him again. The treatments don't actually treat the problem because Matthew's body just has to figure it out on its own. What is does is trick the body into attacking the red blood cells. As long as the medication is in the blood stream the body is so busy with that, it leaves the platelets alone. That is why his platelet count goes up.
Yesterday, I took him in for his second treatment. It went really well. In the hospital he had some side effects from the medication. But yesterday he didn't have any. He feels great and doesn't get that he has to be careful. It is a pain to have so many doctor's appointment and Matthew doesn't like to get poked. They only have to prick his finger and take a few drops to run the test, so it isn't too intrusive. Matthew is a flirt and beyond the pokes I think he likes going to the doctor and getting all that attention from the nurses, residents, and doctors.
We see the hematologist on Tuesday and I'm sure we will be on our way up again.
I'm hoping the ride ends soon. In 75% of cases it takes about 6 months, so we may be riding until January.
2 comments:
We will be praying for you guys! Doctor stuff when your little is not fun at all!! I know!! Love you guys!! Hope your doctor roller coaster ends soon
I'm sorry to hear about all of this. I'm sure that was so scary. I hope and pray that his little body will get this all worked out soon! Take care. I miss you.
-jodi
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